Ok, thanks to personal health, this one is a couple days late in finding its way out of my inbox, BUT.. No time like the Present, as they say, for letting those involved in Ashley X's treatment know what you think.. A HUGE thank you to the originators for posting email addresses for those of us who don't frequent the phone very often..
Resource for this information was a member post over at the Disability Convention Yahoo! group..
PS.. My view on the same..?
- That a human being's, that a person's "self" was taken from them..
- That this will set a very sad, very sick precedent..
- That Ashley's parents may indeed have believed that what they did was "the right thing to do under the circumstances"..
- That the Lives of that many more of my friends with disabilities may now be seen as in jeopardy..
- That Life itself seems to just keep losing value in the eyes of so many people.. What gives them the right..?
ACTION ALERT: Speak Out About the Ashley Treatment
Fax, E-mail, and Phone CampaignFeminist Response in Disability Activism (FRIDA), with the support of Chicago ADAPT (American Disabled for Attendant Programs Today), the national ADAPT community and Not Dead Yet (NDY), invites you to speak out about the Ashley Treatment.
Our Targets: Seattle Childrens Hospital staff involved in the case of nine-year-old Ashleys growth attenuation and sterilization, as well as Melinda Gates, chair of the Seattle Childrens Hospital fundraising committee and Susan Macek, Director of Communications for Seattle Childrens Hospital.
Why: To oppose their permission of what is now known as the Ashley Treatment, and to condemn further permission of such treatments for children with disabilities whose lives are not otherwise at risk.
When: Tuesday, January 9, 2007, starting at 9 am in your time zone.
Contact Info:
Dr. Douglas Diekema, 206-987-2380
B-5520 Emergency Medicine
4800 Sand Point Way NE
Seattle, WA 98105
Fax: (206) 987-3836
E-mail: Douglas.diekema@seattlechildrens.org.Dr. Daniel F. Gunther
Phone: (206) 987-2380
M1-3 Endocrinology
4800 Sand Point Way NE
Seattle, WA 98105
Fax: (206) 987-3836
E-mail: Dan.gunther@seattlechildrens.org.Melinda Gates
PO Box 23350
Seattle, WA 98102
Phone: (206) 709-3100
Fax: (206) 709-3252
Email: info@gatesfoundation.org.Susan Macek
Director of Communications, Seattle Childrens Hospital
Phone: (206) 987-5201
Pager: (206) 469-6310
E-mail: susan.macek@seattlechildrens.org.Ashley is a nine-year-old with a severe cognitive disability. In order to keep her small and more easily cared for by her family, doctors at Seattle Childrens Hospital are having her undergo hormone therapy to stunt her growth. In addition, they surgically removed her breast buds, uterus and appendix. The Ashley Treatment, as her parents call it, is a medical fix to serious social problems we face in America today. The first of these problems is a lack of quality home-based services for people with disabilities. The second is the social attitude that people with disabilities are less than human and therefore fair game for experimentation. The third is a lack of understanding of disability vs. illness: as Joe Hall of South Carolina has stated, "When I was born my parents knew that I would never walk, but they would have never thought it would be acceptable to cut my legs off."
To review Ashleys parents blog, please see: ashleytreatment.spaces.live.com.
To review one of the original articles as reported by the BBC, please see: news.bbc.co.uk/go/pr/fr/-/2/hi/americas/6229799.stm.
We need to let the Seattle Childrens Hospital and its fundraising Chairperson know that the Ashley Treatment has not gone unnoticed by those of us who live with disabilities.
For more information, AND TO KEEP US POSTED OF YOUR ASHLEY TREATMENT ACTIVITIES, please call Sharon Lamp at (847) 803-3258 or e-mail Amber Smock at ambity@aol.com.
(Original) Source: Feminist Response In Disability Activism (FRIDA)
Crossposted at: Georgia Disability Advocates' Calendar.
No comments:
Post a Comment